From Preparation to Purpose: Reflections on the Global Youth Advisory Council at SNF Nostos 2026
By Delice Lumbu, Director of Youth Engagement, SNF Global Center for Child and Adolescent Mental Health, Child Mind Institute
There are moments in youth engagement that remind you why the work matters. As we look ahead to the second “Global Summit on Youth Mental Health” at the Child Mind Institute’s headquarters in New York this September, I’m reflecting on the recent SNF Nostos 2026 celebration in Greece. The sense of leadership, collaboration, and possibility was palpable.
The event marked 30 years of the Stavros Niarchos Foundation (SNF)’s global impact and was centered on Humanity at the Core. Throughout the week, the SNF Global Center at the Child Mind Institute participated in important conversations across three panels — exploring topics like cross-country collaborations, digital innovation, and community-led approaches.
The SNF Global Center also introduced Growing Up Digital: An Evidence-to-Policy Synthesis, a landmark report developed through the Child and Adolescent Mental Health Initiative (CAMHI) in Greece — focusing on risks and solutions associated with adolescent mental health in a digital world, and incorporating the perspectives of the initiative’s Youth Advisory Groups from across Greece. And as part of a panel on SNF’s Global Health Initiative (GHI), Founding President and Medical Director of the Child Mind Institute Harold S. Koplewicz, MD, and Senior Vice President of Global Programs at the Child Mind Institute Giovanni Salum, MD, PhD, explored actionable solutions in shaping stronger systems of care during a conversation moderated by SNF Co-President Andreas Dracopoulos.

“The next frontier will be focused on ensuring evidence informs policy and practice at scale. SNF Nostos 2026 demonstrated what’s possible when philanthropy, research, and youth leadership come together with a shared commitment to action. That is how lasting progress is built,” says Dr. Salum.
As Director of Youth Engagement, I had the privilege of working closely with members of the SNF Global Center’s Global Youth Advisory Council (GYAC) from South Africa, Brazil, and Greece. At SNF Nostos 2026, they took center stage.

Throughout the months leading up to the conference, I watched ideas evolve into plans, uncertainty turn into confidence, and six young people grow into a team that trusted one another enough to challenge ideas, embrace different perspectives, and speak with one collective purpose. The GYAC’s debate explored the complex relationship between technology, education, and youth mental health — moving through a series of interconnected perspectives rather than presenting technology as simply “good” or “bad.”
The conversation opened by examining the potential negative impacts of technology when introduced into schools without sufficient guidance, before exploring the broader mental health implications for children and adolescents. From there, the discussion challenged the idea that simply banning technology is the answer. Instead, members of the council considered the role of parents, families, schools, and communities in helping young people navigate digital spaces safely — and how they can be better supported. The GYAC also explored the generational cycle of digital habits, recognizing that young people often learn how to engage with technology from the adults around them. The debate concluded with a call for stronger digital literacy in schools. Members of the council also voiced the need for a collective approach that equips young people with the knowledge and skills to navigate technology in ways that support, rather than undermine, their mental health.

Additionally, the conference featured a cross-country panel exploring how evidence and partnerships can come together to strengthen child and adolescent mental health systems. Moderated by South African GYAC member Kayla Coetzer, the conversation brought together perspectives from Greece, Brazil, South Africa, and Mozambique — highlighting how different countries are working to translate research and evidence into meaningful action. The discussion emphasized that sustainable systems of change require collaboration between researchers, governments, practitioners, communities, and young people. Panelists shared real examples of how partnerships can help move evidence beyond research and into scalable interventions that respond to local needs and contexts.
In front of an international audience of experts and leaders in child and adolescent mental health, the six young members of the GYAC brought perspectives that were thoughtful, challenging, and grounded in lived experience. The council also created a space for the audience to think differently about the relationship between technology and mental health. Through debate and discussion, they challenged assumptions and demonstrated the value of giving young people genuine ownership of the issues that affect them.
That is the power of bringing young people together across borders.
We asked members of the GYAC to reflect on their time at SNF Nostos 2026
Q: Looking back on your experience at SNF Nostos 2026, what is one moment that will stay with you, and why?
SPYROS:
Of all the memories from SNF Nostos 2026, one stands out above the rest: the second our feet hit the stage. In an instant, the background anxiety transformed into pure presence as we shared our work, our ideas, and our honest fears with the audience. Standing next to my colleagues made all the hard work worth it. It was a collective victory that I’ll carry with me for a long time.
KAYLA:
What stays with me is the incredible feedback following our group debate. After months of planning and in-person rehearsals, to then finally getting to present it and having that hard work be recognized felt amazing. To have people say they will be using our structure with their own youth engagements was truly incredible and felt like what we brought to the table was being seen and then used to spark a different kind of youth engagement that we created and presented.
Denny:
The moment we shared our seeds and thorns after the session, everyone in the Lighthouse came together and connected.
MARIANNA:
The panel because I felt like the audience was really interested in our discussion. Also, I felt like I made a real impact in some people’s lives after receiving positive feedback.
JENNIFER:
The one moment that will stay with me is seeing youth representation woven throughout every part of SNF Nostos 2026. Young people were present in every space — leading conversations, working behind the scenes, and showcasing the impactful work they’re doing in their own countries. It was inspiring to see that youth were not included simply to fill seats or meet a quota, but were genuinely empowered to shape discussions, contribute their perspectives, and drive meaningful change in the mental health space.
FAIDRA:
One of the things that really stayed with me from my experience at SNF Nostos 2026, particularly during our session, was how interested the audience was in hearing young people’s perspectives on the issues and concerns we are facing today. Overall, my experience was truly positive and enjoyable.
Q: What did being part of the Global Youth Advisory Council at SNF Nostos 2026 teach you about youth leadership, collaboration, or meaningful youth engagement?
SPRYOS:
Being part of the GYAC taught me that meaningful youth leadership goes far beyond tokenized representation. Meeting and working with people across the globe and seeing how similar we all are and what we want to achieve. Geography and structural differences are what separates us and changes our journey towards the same goals. All together we can get along, co-create and work towards what we believe. Youth engagement is only authentic when institutions move past using young people as decoration and instead give them direct agency to challenge systems, shape strategy, and advocate for real, structural change.
KAYLA:
It showed me the power of collaboration beyond age, culture, gender, and language. The power of feeling at home amongst difference. I got to see how youth leadership looks outside of just South Africa and celebrate all its forms with my GYAC cohort.
DENNY:
It taught me that youth can actively change and impact spaces with their experiences and ideas.
FAIDRA:
As a young person, I had the opportunity to be surrounded by incredibly talented and knowledgeable people, and I was fortunate enough to listen to their experiences and learn from them. It opened up new perspectives for me and made me see things in ways I hadn’t before. I would absolutely love to have the opportunity to experience something like this again.
MARIANNA:
Being part of GYAC at SNF Nostos 2026 taught me that finding people with similar values is one of the greatest things we can do for ourselves. During the process of preparing for the panel, having people around me who were open to feedback and to true collaboration rather than competition made the experience unforgettable.
JENNIFER:
It taught me the importance of valuing everyone’s contribution in bringing a bigger vision to life. It also showed me the power of breaking down complex concepts so that everyone can understand them deeply and, most importantly, how to collaborate effectively as a diverse team with different backgrounds, perspectives, and lived experiences.
As we continue preparing for the second annual Global Youth Summit on Youth Mental Health and the next chapter of the Global Youth Advisory Council’s work, I carry this experience with me as a reminder of what becomes possible when young people are trusted with leadership.
Not only are they the leaders of tomorrow, but they are already leading today.
Learn more about our work with youth.
The post From Preparation to Purpose: Reflections on the Global Youth Advisory Council at SNF Nostos 2026 appeared first on Child Mind Institute.
Medication Dispensing Patterns Among Individuals With Serious Mental Illness Using a Remote Medication Dispensing and Adherence Monitoring Platform: Cohort Study
Video Game Addiction and Kids: Understanding Internet Gaming Disorder
Every night, getting her 16-year-old son Ben to go to bed was a battle Karla would dread. He played video games online in the evening for hours, chatting with friends on his headset. As the time got late and she reminded him it was bedtime, inevitably he’d be in the middle of some campaign and wouldn’t stop. All his friends were still playing together, Ben would argue, and he would miss out.
It’s a classic disagreement in families: Parents are worried that their kids have a video game addiction — they’re unable to limit their time spent playing — and kids think their parents are overreacting. Who’s right?
The jury is still out. While researchers and clinicians acknowledge that gaming has addictive qualities, what constitutes a disorder and how to recognize the signs are still up for debate.
Why parents worry about video game addiction
“There are lots of reasons why parents don’t like video games,” says Dave Anderson, PhD, a clinical psychologist who treats teens at the Child Mind Institute. “They’ll say kids spend too much time playing, and they’re not spending enough time on schoolwork. The video games are violent and contain sexualized content. They’re playing the game online with their friends, and in the chat, they seem to be saying inappropriate things.”
For many kids, video games are a place for entertainment and social connection — it’s fun and something to do with friends. Problems arise when parents need them to stop. “A lot of parents will say it leads to major conflicts when we’re asking them to stop playing video games,” Dr. Anderson says. “But that does not necessarily mean the kid has a gaming disorder.”
What is internet gaming disorder?
While parents might call it “video game addiction,” it’s called “internet gaming disorder” in the official Diagnostic and Statistical Manual of Mental Disorders (DSM-5). Internet gaming disorder is not a fully recognized disorder in the most recent edition of the DSM-5. Since 2013, it has been provisional, categorized as a condition for further study, underscoring the lack of clear consensus on whether it should be a standalone disorder, even as concerns mount about the mental health effects of video games and internet use generally.
The DSM-5 proposes that someone could have internet gaming disorder if they experience at least five of the following over a 12-month period:
- Preoccupation with video games where it becomes the dominant activity in daily life
- Withdrawal symptoms such as irritability, anxiety, or sadness when games are taken away
- Needing to spend increasing amounts of time playing video games
- Has made unsuccessful attempts to control how much time they spend playing games
- Loss of interest in other hobbies
- Has continued game-playing despite being aware that it’s causing problems in their life
- Has lied to others about how much they are playing video games
- Uses gaming to escape or relieve a negative mood
- Has jeopardized or lost a significant relationship, job, or educational opportunity because of gaming
While gaming disorder hasn’t yet been accepted as an official disorder in the United States, the World Health Organization (WHO) adopted it in their standard classification in 2019, and it went into effect in 2022. The criteria are simpler in what’s called the International Classification of Diseases (ICD-11). By the ICD-11 definition, someone has a gaming disorder if they fit at least two of the following over a 12-month period:
- Impaired control over gaming (e.g., onset, frequency, intensity)
- Increased priority given to gaming so that it takes precedence over other life interests and daily activities
- Continuation or escalation of gaming despite negative consequences
Some researchers argue that the simpler ICD-11 definition, with its focus on how gaming negatively affects other aspects of life, is better at capturing when gaming is truly a problem. Kids who use gaming as an escape when they are unhappy might get labeled with internet gaming disorder according to the DSM-5, for example, so clinicians are concerned about risks of overdiagnosis. While there is growing recognition that excessive gaming can be harmful, experts are still studying whether it is an addictive disorder.
Internet gaming disorder and other diagnoses
Dr. Anderson notes that gaming disorder rarely occurs without other disorders, such as ADHD, depression, or social anxiety. “Most of the time we see problematic gaming, it is co-occurring with something else, like ADHD,” he says. “Or they might be on the autism spectrum, and having a hard time making friends, so gaming becomes a kind of retreat. Or they’re depressed, and they feel like other activities aren’t necessarily going to be that rewarding. So they turn to gaming.”
But that doesn’t mean that it isn’t important to take it seriously. Douglas Gentile, PhD, a professor of psychology at Iowa State University who researches the effects of video games and media, notes that several disorders occurring together isn’t unusual. “In fact comorbidity is the norm, not the exception, in mental health,” he says. And he adds that his own research has found evidence that problematic gaming can lead to or exacerbate depression.
“Let’s say there’s a kid who’s not doing well in school, doesn’t have a lot of friends and gets depressed,” he hypothesizes. “So he goes home and he plays games as a way of relieving the stress of that. And that, of course, doesn’t help him make new friends, and it doesn’t help his grades. So he doesn’t get better at those. So he gets more depressed, so he plays more games, so he gets more depressed, right? At some point, the gaming can become a problem on its own.”
Dr. Gentile stresses that it’s valuable for pediatricians, clinicians, and counselors to ask about gaming habits along with other mental health concerns. That’s why he hopes gaming disorder will be recognized as a full disorder in the next edition of the DSM: “We will start remembering, oh, we should ask about this, too, because it often does co-occur with ADHD, depression, anxiety, social phobia, poor school performance, aggression.”
How to tell when gaming is a problem
When a family is concerned about excessive time spent playing video games, Dr. Anderson will ask families for information:
- How much time does your child spend gaming?
- How does it impair their functioning and academic performance?
- How does it affect their sleep?
- How does it lead to conflict?
- What other diagnoses do they have?
Dr. Anderson is cautious about making the diagnosis of gaming disorder if he thinks there’s an underlying condition, because treating that underlying condition might mean the problematic gaming will resolve as well.
“If I think a kid’s depressed and they’re also gaming too much, I am going to make sure that I emphasize the treatment for depression,” Dr. Anderson says. “Because treatment for depression involves behavioral activation — getting the kid involved in certain activities in life, boosting their mood with that kind of that involvement and social support — which is antithetical to the gaming. So that would treat the downstream problem of gaming.”
Treatment for internet gaming disorder
Treatment for internet gaming disorder usually involves cognitive behavioral therapy (CBT), including emotion regulation training skills, which can help people face their problems in life if they’ve been using gaming as an escape. Clinicians also may use motivational interviewing and family-based therapy.
Dr. Gentile has seen programs where family involvement seems to make a difference. One theory, he says, is that kids play video games because it satisfies the deep human need for autonomy, belonging, and competence: They are in control, play with friends, and are good at it.
“If you’re not getting these needs met in real life but you’re getting them met by playing games, you’re more motivated to keep doing the games,” Dr. Gentile says. So the program works with families to get those needs filled with real-life activities, like learning to fish or joining a sports team. Parents also sit down and learn to play video games alongside their child, so they better understand why the kid likes it so much — and that creates a bridge to help improve communication.
Setting boundaries on gaming
While some parents want kids to stop gaming entirely, Dr. Anderson advises against that in most cases. “There are a lot of kids who see themselves as gamers — it’s a part of their identity,” he says. Instead, he encourages parents to place reasonable boundaries on gaming so that their child is investing enough time in four main areas: academics, extracurricular activities, face-to-face time with friends, and sleep.
“This is the thing we’re trying to collaboratively problem solve for,” Dr. Anderson says. “How do we get it so that you complete your homework, you have at least one activity you’re invested in — whether you play an instrument or a sport, or you’re in the school play. You’re spending time with friends in person, and you’re getting enough sleep.” When those are in place, then families can test out having the child engage in a moderate amount of gaming. “Time spent on games is a want, not a need. It’s earned,” he says.
Kids will push back on restrictions, of course. “That just means that we might need more of a behavioral approach — how they earn video game playing time, or think more about the consequences if they, for example, break the controller when they come off of it,” Dr. Anderson says.
“The complaints we hear from kids are, ‘My friends are on at different times. You’re making it so I can’t connect to my friends,’” he says. “And we’ll say, ‘Look, we’re willing to make a reasonable accommodation to try to figure out how you can be on with your friends at the right time. We need these other things that are best for your development. We can then negotiate about when gaming happens.’”
Tips to limit video games
To enforce limits on gaming, Dr. Anderson coaches parents on how to make sure games aren’t available except during the designated times. With younger kids, games are usually played on devices like an iPad that can be taken away. The difficulty in setting boundaries, he says, “usually involves an ‘extinction burst,’ which is the idea that if you’ve got a kid who throws tantrums, their tantrums are going to get worse before they get better when we set boundaries.” He helps parents make a plan to maintain everyone’s safety to get past these behaviors, and he works with the child to learn emotion regulation skills to use when they have to stop doing an activity they enjoy.
But older kids need computers to do schoolwork, so limiting access to games is more difficult. To control cellphone use, he suggests setting screen time limits or blocking apps by using a device like Brick. To control access to video game consoles or computers, parents can remove the power cord.
With kids of all ages, families work on reducing conflict by making access to games something that is predictable and available as long as their other essential developmental needs are fulfilled.
“I want parents to realize that all of those symptoms in youth don’t happen in isolation,” Dr. Anderson says. “Even if you think your child has internet gaming disorder, frequently what we want is a comprehensive diagnostic evaluation to be sure there’s not something else treatable that’s underlying this behavior. Then we can then restore a bit of balance to life and make it so that gaming is not the major activity this kid’s engaging in.”
Frequently Asked Questions
Internet gaming disorder is a term used for playing video games so much that it’s difficult to control and starts interfering with important parts of life. It’s included in the DSM-5 as a condition for further study, meaning experts are still debating exactly how it should be defined.
Experts agree that excessive gaming can become problematic for some kids and adults, but there is still debate about whether it should be categorized as an addiction disorder.
Warning signs include being unable to cut back on gaming, losing interest in other activities, becoming upset when gaming is restricted, and continuing to play despite negative consequences. Gaming can also start affecting sleep, school performance, friendships, or family relationships.
Clinicians look at whether gaming has become hard to control and whether it is causing significant problems in daily life over an extended period of time. They also consider factors like sleep, school performance, family conflict, and whether conditions such as ADHD, anxiety, or depression may be contributing to the behavior.
The post Video Game Addiction and Kids: Understanding Internet Gaming Disorder appeared first on Child Mind Institute.
Exploring Real-World Use of AI Chatbots for Mental Health Support: Cross-Sectional Survey Study
Large Language Model–Based Behavioral Activation Chatbot for Young People With Depression Using Artificial Users and Clinical Experts: Mixed Methods Evaluation
Background: Mental health chatbots are increasingly used to support people with depressive symptoms, and large language models make these systems more flexible than rule-based chatbots. However, it remains unclear how well large language model–based chatbots deliver structured psychological interventions. Objective: This study examined how well a GPT-4o–based chatbot delivered a behavioral activation intervention for young people with depression using sessions with artificial users and clinical expert assessment. It also identified limitations and potential refinements. Methods: We implemented a GPT-4o (gpt-4o-2024-08-06; OpenAI)–based chatbot using a structured system prompt to deliver a single-session behavioral activation intervention for people with depression aged 14 to 29 years. We generated 48 sessions with GPT-4o–based artificial users derived from clinical vignettes varying across 7 characteristics. Ten clinical experts, either licensed psychotherapists or advanced psychotherapy trainees, independently assessed the sessions using the 14-item Quality of Behavioral Activation Scale (Q-BAS), rated from 0 to 6, supplemented by rating therapeutic capabilities, artificial user authenticity and difficulty, and qualitative feedback. Results: The chatbot completed all 7 intervention phases in every session. The mean holistic session quality rating was 3.94 (SD 1.23), and the mean Q-BAS rating was 4.03 (SD 1.18). Thirteen of 14 Q-BAS components exceeded the satisfactory threshold of 3. Ratings were highest for mood assessment (mean 5.42, SD 1.09) and activity planning (mean 4.98, SD 1.41) and lowest for explaining positive reinforcement (mean 2.92, SD 2.30) and supporting activity-mood monitoring (mean 3.02, SD 2.04). Therapeutic capability ratings were highest for message safety (mean 5.90, SD 0.37), message clarity (mean 5.56, SD 0.77), and objective, nonjudgmental communication (mean 5.17, SD 1.04) and lowest for therapeutic rapport (mean 4.12, SD 1.45) and natural conversation flow (mean 4.25, SD 1.42). Artificial users were rated below the scale midpoint for authenticity (mean 2.75, SD 1.41) and difficulty (mean 1.23, SD 1.46). Clinical experts described the chatbot as structured, clear, and safe but identified insufficient clinical reasoning as the main limitation, particularly in evaluating the therapeutic suitability and feasibility of activities, barriers, solution strategies, and rewards. Artificial users were often highly compliant, especially when identifying positive activities. Conclusions: In expert-rated sessions with artificial users, the chatbot delivered the behavioral activation intervention as intended and performed strongest on procedural components. It performed less well on positive reinforcement and activity-mood monitoring, indicating refinement needs in clinical reasoning, follow-up questioning, and evaluating whether proposed activities, plans, barriers, solution strategies, and rewards are therapeutically appropriate and feasible. The findings identify targets for improvement before testing with human users, while the artificial user design and expert ratings limit conclusions about real therapeutic interactions.
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Young Researchers Honored During the 2026 Youth Mental Health Academy Capstone Awards
Now in its fourth year, the Youth Mental Health Academy (YMHA) at the Child Mind Institute welcomed more than 400 high school students this summer. For five weeks, they engaged in hands-on learning, career exploration, mentorship, and professional development.
Created in partnership with the state of California, YMHA is designed to expand access to mental health career pathways — with a focus on young people from communities historically underrepresented in the mental health workforce. Since launching in 2023, the program has served more than 3,000 students.

Students in the 2026–2027 cohort developed capstone projects focused on mental health topics that matter to them and their communities. From the impact of social media and screen time to the relationship between identity, economic background, and mental health outcomes, they brought their own questions, perspectives, and experiences to their research.
On the final day of the program, students presented their capstone projects to an audience of their peers, mentors, and program staff. Following the presentations, students and their projects were selected for special recognition in six categories: community impact, research excellence, innovation, communication, collaboration, and leadership.
Meet the 2026 YMHA Capstone Award Winners
Community Impact Award
Growing Up Too Soon: The Impact of Parentification on Relationship and Emotional Well-Being
Zamya Slack, Daniela Velazquez, Brenda Ramirez, Amy Marroquin, and Brandon Mares Lopez
YMHA Site: Compton College
Research Excellence Award
Siobhan Walsh, Samian Syed, Sinthia Salcedo, Sn’cer Wannamaker, and Sophia Park
YMHA Site: Virtual
Online Mental Health Resources and Underserved Communities
Carl Aragones, Chloe Tan, Arturo Perez, and Natalia Martinez
YMHA Site: Virtual
Innovation Award
The No-Sleep Club: How Does Lack of Sleep Affect the Youth in Low-Income Communities
Ivery Norman, Jaide Hood, Jocelyn Segovia, and Jackson McGhee
YMHA Site: California State University, Dominguez Hills
Excellence in Communication Award
More Than a Game: Investigating the Effects of High School Sports Team Bonding on Teen Mental Health
Jayden Tcheyacnou, Mattox Williams, Landen Cassel, and Joseph Malana
YMHA Site: California State University, Dominguez Hills
Collaboration Award
Positive vs. Negative Peer Pressure: How It Affects Teen Mental Health
Erica Mandujano, Samaria Ramirez, Prevailer Umejesi, and Zhiyah White
YMHA Site: California State University, Dominguez Hills
Student Leadership Awards
Devin Bennett
YMHA Site: California State University, Dominguez Hills
Mercy Quezada
YMHA Site: Compton College
Julian Sanchez
YMHA Site: Virtual
Explore award-winning capstone projects from previous YMHA cohorts.

While the Summer Academy has come to an end, the YMHA journey continues for these students. Throughout the school year, they will participate in mentorship, workshops, networking opportunities, and other programming designed to build on their summer experience as well as support their academic and career development.
The mental health field needs diverse voices and professionals who understand the communities they serve. YMHA gives young people the opportunity to explore their interests, build meaningful connections, and begin to see themselves as part of the field.
Learn more about the Youth Mental Health Academy.
The post Young Researchers Honored During the 2026 Youth Mental Health Academy Capstone Awards appeared first on Child Mind Institute.
My Lived Experience with BDD
– by Kellie Smith
My journey with Body Dysmorphic Disorder began at sixteen years old, when I developed a debilitating preoccupation that something was wrong with my face. When I looked in the mirror I saw a reflection that was more creature than human.
My BDD revolved around perceived distortions of my face. I obsessed about its size, shape, and specific features that I thought made it look “sub-human”, such as hair, teeth, and skin.
I spent hours doing rituals that I hoped would “fix” or “hide” the parts that felt disfigured: I picked, scraped, and washed my face until it bled. I wore hats, scarves, and oversized clothing. I cut my hair short, then shorter, until I eventually shaved my head completely.
Within months of the onset of my BDD, my life had essentially ended. I quickly became housebound and was forced to drop out of school. I spent my days hiding in bed, relying on sedatives to stay asleep and avoid thinking about my face. I became suicidal and was in and out of psychiatric units and partial hospitals. The mental agony my own face caused me is impossible to describe, even now. Simply put, I felt too ugly to live.
My attempts to explain this distress to the many mental health professionals I encountered over the next couple of years were pointless. Most brushed it aside as the typical body image dissatisfaction that many teenagers face. Others could be downright cruel. Memorably, one psychiatrist I saw in a time of crisis rolled his eyes and commented “oh well, not everyone can look like Barbie.”
Through countless Google searches, trying to figure out what was wrong with my face, I encountered the term Body Dysmorphic Disorder. I dismissed it immediately. To even consider that diagnosis I would have had to accept that what I saw in the mirror was not reality but an illusion – and that felt inconceivable.
Having lived with OCD since early childhood, I believed I was familiar with the torment of my mind deceiving me. But BDD attacked my sense of self in a way I could never have imagined. At its worst, it made me question whether I was even human.
At eighteen, I was referred to the OCD Institute at McLean Hospital in Massachusetts for residential treatment. At the OCD Institute, I was formally diagnosed with BDD and learned that, as an obsessive-compulsive related disorder, it could be treated using many of the same approaches as my OCD. Over the following months, I participated in Exposure and Response Prevention (ERP) for both OCD and BDD.
Anyone who has participated in ERP knows that it requires tremendous patience, resilience, and flexible thinking. Early in treatment, I became consumed with trying to determine whether the way I saw myself was distortion or reality. In time, I learned to accept that I might never know with certainty how I truly looked. As with every other aspect of my OCD, learning to embrace uncertainty became the key to gaining control over my BDD.
I returned to the OCD Institute for treatment twice in the following years, primarily to continue treating my BDD.
It took hard work and collaboration with my treatment team, but through ERP, along with finding the right medications, I was able to begin reclaiming my life.
After discharging from the OCD Institute in 2019, I completed high school online and enrolled in community college while continuing outpatient treatment. Last year, I graduated with my bachelor’s degree and began working as a Peer Support Specialist. This fall, I begin my master’s degree in Clinical and Counseling Psychology. Along the way, I’ve been able to fill my life with beautiful things: friendships, relationships, dogs, travel, and books – all the things I once believed I would never have in my life because I was so afraid of my face. Perhaps the most meaningful part of my life recently has been my involvement in the OCD and BDD communities. When I participate in alumni panels at the OCD Institute or speak about BDD at the IOCDF conference, I’m able to make peace with the suffering BDD put me through and the years it took from me.
Body Dysmorphic Disorder remains an all-consuming force that can still threaten to upend my life. There are days when I look in the mirror and feel familiar despair, when simply walking out the door feels impossible. But now I have the skills and support to walk out the door anyway. That has made all the difference.
The post My Lived Experience with BDD appeared first on International OCD Foundation.
A New Partnership With the New Jersey Department of Health
School and Community Programs is excited to share the launch of a new partnership with the New Jersey Department of Health (NJDOH) to expand access to mental health education and support across Mercer, Monmouth, Sussex, and Warren counties. Through this grant-funded initiative, our clinicians are presenting at community events, caregiver workshops, and educator trainings focused on emotion regulation, building strong connections, promoting positive behaviors, healthy digital habits, and other topics that support child and family well-being.

On August 20, Danielle Young, LCSW, and Ashley Gonzalez, LMSW, attended the annual Back-to-School Fair at Project Self-Sufficiency’s Journey Family Success Center, which aims to prepare hundreds of families in Sussex and Warren counties for a successful school year, offering free resources, networking with local agencies, and community support. The fair is designed to equip children with the tools they need to succeed academically while helping parents access resources for a smooth transition into the new school year.
Young and Gonzalez ran a booth representing the Child Mind Institute and greeted more than 430 community members. Parents, caregivers, and teachers received free resources and many requested additional information on how to support children during the back-to-school transition, relaxation techniques, and coping skills. Children enjoyed activities about how to make self-soothe kits and worksheets helping them better understand how emotions feel in our bodies.

Is your school or community event based in Mercer, Monmouth, Sussex, or Warren County? Reach out to schoolandcommunity@childmind.org to partner with us. We would love to bring our school and mental health resources to your community.
This publication is funded by the Centers for Medicare & Medicaid Services (CMS) of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $147,250,805.85, with 100 percent funded by CMS/HHS. The contents are those of the author and do not necessarily represent the official views of, nor an endorsement, by CMS/HHS, or the U.S. Government.

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My Journey with Body Dysmorphic Disorder
– by Ryan Lipsett
Next Gen Youth Advisor
National Alliance on Mental Illness (NAMI)
If you met me a few years ago, you probably would have seen someone who looked “fine.” I smiled when I needed to, went to school, spent time with friends, and tried to blend in. What you wouldn’t have seen was the constant battle happening in my mind.
I lived with Body Dysmorphic Disorder (BDD), and for a long time, I didn’t even know there was a name for what I was experiencing. I became consumed by the belief that there was something wrong with the way I looked. I would spend so much time analyzing my appearance, avoiding mirrors one moment and compulsively checking them the next. Every reflection felt different, and none of them felt right. It became exhausting.
BDD didn’t just affect how I saw myself, it affected every part of my life. It isolated me from friends, made social situations overwhelming, and convinced me that everyone around me noticed the flaws I couldn’t stop thinking about. I canceled plans, withdrew from people I cared about, and felt trapped by thoughts that seemed impossible to escape.
For a long time, I believed I was alone.
One of the hardest parts of living with BDD was how little people talked about it, especially among men. Even within conversations about mental health, I rarely heard anyone mention body dysmorphic disorder. I wondered if anyone else understood what I was experiencing. That silence made it even harder to reach out.
What began to change everything for me was finding community.
Hearing other people share experiences that sounded so similar to mine was something I’ll never forget. For the first time, I realized I wasn’t “crazy,” and I wasn’t the only person whose mind distorted the way they saw themselves. Peer support didn’t make my BDD disappear overnight, but it gave me something I desperately needed: hope.
Knowing that other people understood without judgment made it easier to be honest about my own struggles. Their stories reminded me that recovery wasn’t about becoming perfect or never having difficult days, it was about learning that my thoughts didn’t have to control my life.
My own journey also included professional support. Therapy, medication, and learning healthier coping strategies all played important roles in my recovery. It wasn’t a straight path. There were setbacks, frustrating days, and moments when I questioned whether things would ever get better. But little by little, they did.
As I became more comfortable talking about my experiences, I realized how powerful sharing our stories can be. Today, I have the privilege of speaking about mental health through organizations like NAMI, where I share my experiences with anxiety, depression, and BDD. What once felt like something I had to hide has become one of the ways I can help others feel less alone.
Advocacy hasn’t “cured” my BDD, but it has transformed how I see it. Instead of carrying shame, I now use my experience to challenge stigma and remind others that mental illnesses deserve understanding, not judgment. Every time someone tells me, “I thought I was the only one,” I’m reminded why these conversations matter.
BDD Awareness Day is important because awareness creates recognition, recognition creates understanding, and understanding helps people reach out sooner. The more we talk openly about BDD, the more likely someone struggling in silence will realize there is a name for what they’re experiencing, and that effective treatment and support exist.
If you’re reading this and struggling with BDD, I want you to know that you are not alone. Even if your mind is telling you otherwise, you are so much more than the thoughts BDD feeds you. Recovery doesn’t mean every difficult thought disappears. It means those thoughts no longer define who you are or determine how you live your life.
There is hope. There are people who understand. There is help available.
If sharing my story helps even one person realize they aren’t alone, then every difficult step along my journey has been worth it.
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